PEMpod
Podcast
Click here for Grief Stories series!
Other episode Youtube links below.
You can also check out our podcast wherever you like to listen to podcasts
Episode 16: Jennie Jacques: ME/CFS and Vikings!
In this episode we talk to Jennie Jacques who played Queen Judith in the History Channel Vikings series. Jennie talks about her experience of becoming ill with ME/CFS in 2018 and her passion for the science around the illness. Jennie asserts that this is not a mystery illness and stresses a desire to make a difference for the ME community. We also hear about her famous missing ear and her zebra print knickers!
Jennie organises the Bake4MECFS initiative to raise money for ME charities. You can also purchase mugs through the website!
Episode 15: Patricia Fortlage: Fine art photographer chronicles her Chronic Illness and ME/CFS journey
Patricia Fortlage is an award-winning photographic long-form storyteller and fine art photographer. In this episode we talk about her project 'Lemonade' which uses dramatic, personal and sometimes comical images to express her 'love letter to the chronic illness community'. You can find Patricia's portfolio on her website.
Episode 14: Sally Doherty: Toby and the Silver Blood Witches
Sally Doherty is a children's author living with ME/CFS in England. Sally has two books published in the Toby trilogy with further work to come in the year ahead. Here Sally talks to us about her ME journey, the importance of writing characters with ME into her work and how she manages her writing alongside living with ME. Sally's books can be found on Amazon here.
Episode 12: A Girl Beyond Closed Doors with Jessica Taylor-Bearman
In this episode we talk to Jessica Taylor-Bearman who spent her teenage and young adult years living with very severe ME/CFS. We talk about her life as portrayed through her first two autobiographical books and look forward to the release of her third book, A Girl Beyond Closed Doors. A Girl Beyond Closed Doors is released on the 19th October 2023 and can be ordered here along with Jessica's previous books.
Episode 11: Chewing the Cud
Quality of Life Decisions when living with ME/CFS
In this episode Dov and Dan catch up and 'chew the cud' over a range of issues relating to life with ME. We review recent interview episodes, chat about how we can involve people with severe ME in the podcast, navigating hospital visits, talk about decision making and how this impacts quality of life and go where the conversation takes us!
Memes/articles mentioned by Dov:
“Pretty much no impairment is as simple as abled people think it is…” Full text Here
Link to pain/fatigue/symptom charts made by pwME.
Dan's music video, 'Type of Living':
UK government consultation: interim delivery plan:
Episode 10 parts 1 & 2
In this episode we talk to Sarah Boothby, who's daughter Maeve Owen died from ME in 2021. Sarah and Dan talk about Maeve and her writing.
In part 2, Sarah reads from Maeve's novel: The Alchemists; or Economic Consequences of the Peace. Here is the text for you to follow along.
Artwork for thumbnail by Amy Koller Anderson.
Episode 9: Amplifying Absence with Alison Larkman
This episode we talk to Alison Larkman, an artist living with ME in Bristol, UK. Alison is planning a significant roaming art installation project next summer called I Would Be Here If I Could. You can learn more and take part at: www.iwouldbehereificould.com
Alison's other work can be seen at: alisonlarkman.com
To listen to Michael Brooks' podcast on Decode ME, it’s episode number 7.
Episode 8: Redefining Gravity with Sally Callow
In this episode we talk to Sally Callow who is organising a significant music event in the summer of 2024 to raise awareness of ME and to fund ME research.
Episode 7: ME and Identity
In this episode Dov and Dan talk about trying to find a sense of self whilst living with ME and chronic illness.
This week’s weird symptoms are watering eyes. Dan’s eyes do a lot of watering in the evening and he doesn’t know why. Anyone else get this?
Poems are provided by Lizzy Horn and Maija Haavisto. You can listen to Maija reading her poem and talking about chronic illness here: https://poets.org/poem/shipplum
You can listen to more of Ramy's music on twitter @ramyisback Please e-mail us with any weird symptoms you'd like to share! We're also accepting poetry submissions. Also, let us know what item you love that really helps you live with chronic illness!
Episode 6: The Truth About Chronic Illness with Vlad Vexler
In this long form discussion, Dan meets Vlad Vexler, philosopher in politics and musical aesthetics to discuss his ME journey and his successful YouTube career. We talk about challenging persisting psychologisation narratives around ME, as well as Beethoven, and transhumanism.
Episode 5: Magical Thinking and Living With ME
In this episode Dov and Dan discuss the pitfalls of magical thinking when living with ME and chronic illness. This is a longer episode and covers some heavy themes, so please listen at your own pace. The clip we played by Carrie Poppy on retrospective bias and trauma hunting is part of a talk she gave to the Skeptics in the Pub channel on Mental Health Pseudoscience on Social Media and can be found here.
This episode also includes quotes from Laurie Edwards’ book In the Kingdom of the Sick: A Social History of Chronic Illness in America originally published in 2013.
Episode 4.5: Aftermath
A short video by Dan about crashy-ness after working on the Talking Time episode. It’s so important to have space here to be honest and be ourselves and acknowledge the cost of exertion.
Episode 4: Talking Time
In this Episode Dan shares a song he’s written about time and talks about his song writing process. Then Dan and Dov talk about how ME has changed and influenced their experience of time and the ways they think about it.
You can also find this episode on Spotify, Apple, and anywhere else you listen to podcasts!
Episode 3: Anna’s Ornithological Journey
In this episode Dan talks to Anna K. Wood about her bird photography (she has a book with all profits going Action for ME! This link is for US Amazon but you can get it on Amazon worldwide.) And Dan shares another ad for an Exhaustion Enterprises product!
You can also find this episode on Spotify, Apple, and anywhere else you listen to podcasts!
Episode 2: Dan’s Story
In this episode Dan tells a bit of his ME story and shares another ad for Exhaustion Enterprises.
You can also find this episode on Spotify, Apple, and anywhere else you listen to podcasts!
Episode 1: Dov’s Story
In this episode Dov shares a bit about his ME story and Dan shares a humorous ad for a product by Exhaustion Enterprises.
You can also find this episode on Spotify, Apple, and anywhere else you listen to podcasts!
Intro
In this video Dan and Dov give a little introduction to the Post-exertional Mayonnaise podcast.
You can also find this episode on Spotify, Apple, and anywhere else you listen to podcasts!